This may include:
Once you understand the basics of your condition, you will be better equipped to make the best decisions for yourself.
While your doctor (HCP) may or may not know which clinical trials are right for you, he or she will be able to talk to you about the role clinical trials can play as a care option.
TrialScout is designed to make it as easy as possible for you to find a clinical trial.
After choosing a research center, call, email or visit the research center by using the information provided on TrialScout. If you don’t get a response, feel free to contact us instead. We’ll do our best to get in touch with the research center for you.
The last step in finding a clinical trial that is right for you is scheduling an appointment. During this appointment, the research staff will talk to you about the study and determine whether you are eligible to join.
After you have learned about the purpose of the trial - including the potential risks and benefits - you can choose to join the study. You will sit down with a researcher and discuss the study in detail and then sign a form stating that you understand all the information and agree to participate. You are always able to withdraw your consent and leave the study at any time.
For some trials, participants are split into groups. Some groups will receive different doses of the drug being tested, and some group may even receive a dummy pill, or placebo. ALL groups are regularly monitored by medical professionals throughout the study. (click here to learn more about placebos). All of these groups are important to research because they help researchers determine how well the new treatment works compared to other care options.
During the clinical trial, researchers will do tests and watch for side effects of the new treatment. They will ask you answer questions and sometimes ask you to keep a daily diary to record progress. Researchers also will ask about the lifestyle impact the treatment, such as your ability to engage in day-to-day activities, how your work life is affected, and your overall quality of life.
When the trial ends, the results sometimes are made available to participants who would like them. Researchers often publish the study results to help the work of other scientists. Not all clinical trials require results to be posted, so be sure to ask when starting a trial if you would like further information to be made available to you.
: Global Participation in Clinical Trials Project. U.S. Food and Drug Administration, 2016, www.fda.gov/downloads/Drugs/InformationOnDrugs/UCM570195.pdf+.